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hdsanational

HDSANational

HDSA's mission is to improve the lives of everyone with Huntington's disease and their families.
Supporting youth and young adults @hdsa_nya

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#letstalkabouthd with Will Forte @orviv

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families this May!

Thanks to a generous matching challenge, every dollar donated will have double the impact — helping expand support, strengthen services, and bring hope to families who need it most.
Awareness starts the conversation. Action changes lives.

To learn more about #HuntingtonsDisease & the #HDSAFamily and support the HDSA's mission, please visit: hdsa.org/hdawareness

#HDAwareness #HDAwarenessMonth #HDSAFamily #HuntingtonsDisease #HD


565
6
1 weeks ago


It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago


It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

It takes a village and mine is the best!

When it came to raising money for Team @hdsanational and the @chimarathon this year, I decided I wanted to do something a little different. I know that my favorite people equally enjoy trivia and happy hour…So, I paired the two, hoping that I could probably just about hit my goal if we did it right.

It was a success! & @missbostons was a phenomenal host!

Even with a rainy night, we had a great turn out. I met a new local HD family and everyone had a great time. Most importantly, after a pending check deposit from HDSA-I’ve raised over my goal!!!!!

Thank y’all for the love and to every single person who has offered your support. I won’t stop talking about HD, but, I will pair my fundraising asks down significantly!

One day soon, I hope to god, we will have access to a disease modifying therapy & we will celebrate and I’ll throw a big party again! For now, I’ll spend the next 20 weeks running toward Hope and for all that is to come!

If you are still looking for an opportunity a way to honor HD awareness month and the resilience of the HD community, please consider a donation to HDSA. Please know every dollar goes toward providing vital research, education and advocacy; https://give.hdsa.org/MannOnAMission. Link in bio!


30
1
5 hours ago

Throughout the month of May, buildings and landmarks across the country were illuminated in blue in honor of everyone impacted by Huntington’s disease 💙

We extend our heartfelt thanks to all participating sites and organizations, as well as the dedicated community members who helped make these incredible lightings possible. Your support helped raise awareness, shine a light on Huntington’s disease, and honor the individuals and families impacted every day.

Together, we shine for hope. Together, we create lasting impact.

To learn more about HD Awareness Month, and how you can help support the HDSA's mission, please visit: hdsa.org/hdawareness

#HDAwarenessMonth #HuntingtonsDisease #LightItUpBlue #HDSA #HelpForToday #HopeForTomorrow #HDCommunity


16
1
8 hours ago

#letstalkabouthd and #HDAwarenessMonth with Will Forte, his brother-in-law Doug, and Honestly HD

Don't miss this informative video discussing HD, the symptoms of HD chorea, and the importance of planning ahead.

For more information, and helpful resources, please visit: www.honestlyhd.com and to learn more about HD Awareness Month, and how you can help support the HDSA's mission, please visit: hdsa.org/hdawareness

#HonestlyHD #HDAwareness #HDSAFamily #HuntingtonsDisease #HDSA #HD


53
12 hours ago

#letstalkabouthd and #HDAwarenessMonth with Marianna Palka @mariannapalka

A heartfelt thank you to everyone who has helped raise the global voice for Huntington’s disease awareness this May by sharing your videos, stories, and photos using #LetsTalkAboutHD

To learn more about HD Awareness Month, and how you can help support the HDSA's mission, please visit: hdsa.org/hdawareness

Every dollar you donate will be doubled through a generous matching challenge, amplifying our efforts to expand support, enhance services, and provide hope to families in need.
Awareness starts the conversation. Action changes lives.

#HDAwareness #HDAwarenessMonth #HDSAFamily #HuntingtonsDisease #HD


20
15 hours ago


#LetstalkaboutHD and #HDAwarenessMonth with the HDSA Northern California Chapter.

Check out these great pictures from the 2026 HD Family Education Day that took place in Sacramento, California on May 2nd.

For more information about the Northern California Chapter, and their upcoming events, visit the link in our bio.

#HDAwareness #HDAwarenessMonth #HDSAFamily #HuntingtonsDisease #HD


13
1 days ago

#LetsTalkAboutHD and #HDAwarenessMonth with our friend Heather, and Teva.

Watch this inspirational video detailing Heather's relationship with her husband Nathan, her Journey with HD, and the importance of Caring for Caregivers.

For more information, and helpful resources, please visit: www.honestlyhd.com

Caring for someone with Huntington's disease (HD) can often feel isolating, but you are not alone. By sharing experiences and support, we can uplift one another on this journey together. There is strength and hope in our community. 💙

#HDAwareness #HDSAFamily #HuntingtonsDisease #Caregiver


3
1 days ago

Tonight, New York State shines blue for everyone impacted by Huntington’s disease 💙

From 1WTC to Niagara Falls, iconic landmarks across the state are lighting up blue in recognition of HD Awareness Month and standing with the Huntington’s disease community in raising awareness, honoring families, and inspiring hope for the future.

A heartfelt thank you to New York State and all participating sites for helping shine a light on Huntington’s disease and the families impacted every day.

Together, we shine for hope. Together, we create impact.

#HDAwarenessMonth #HuntingtonsDisease #LightItUpBlue #HDSA #HelpForToday #HopeForTomorrow #HDCommunity


177
4
2 days ago

If you have an upcoming birthday or significant anniversary to celebrate this HD Awareness Month, you can celebrate by raising awareness and support for those living with HD by setting up a fundraiser on Facebook or Instagram with HDSA!

#HDAwarenessMonth #Huntingtonsdisease #LetsTalkAboutHD #HDSA #HDAwareness


9
2 days ago

#letstalkabouthd and #HDAwarenessMonth with Will Forte and Honestly HD

Don't miss this informative video discussing HD, HD chorea, and the incredible HD community.

For more information, and helpful resources, please visit: www.honestlyhd.com and to learn more about HD Awareness Month, and how you can help support the HDSA's mission, please visit: hdsa.org/hdawareness

#HDAwareness #HDSAFamily #HonestlyHD #HuntingtonsDisease #HDSA #HD


378
12
2 days ago

#LetstalkaboutHD and #HDAwarenessMonth with the HDSA Oklahoma Chapter

Check out this article from Tulsa World previewing the 2026 Team Hope Walk taking place in Tulsa, Oklahoma this Saturday, May 30th!

To read the full article, and find more information about the 2026 Tulsa Team Hope Walk this weekend, visit the links located in our bio.

#HDAwareness #HDSAFamily #HuntingtonsDisease #HD


27
2 days ago

#LetstalkaboutHD and #HDAwarenessMonth with the HDSA Illinois Chapter.

Check out these great pictures from the 2026 Team Hope Walk that took place in Naperville on May 17th.

For more information about the Illinois Chapter, and their upcoming events, visit the link in our bio.

#HDAwareness #HDAwarenessMonth #HDSAFamily #HuntingtonsDisease #HD


11
3 days ago


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