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heather0544
Heather Kryczka
The past week has been an absolute whirlwind for our family. On April 13th, my sister/@heather0544’s sister-in-law Heather and our brother-in-law Sean welcomed their baby boy, Oliver Fox — a healthy, bright-eyed 7 pounds 2 ounces who joined my niece Luna (6) and nephew Dylan (3) at their home in Vermont.
Five days later, everything changed.
Oliver was diagnosed with SCID — Severe Combined Immunodeficiency — an extremely rare condition that affects just 1 in 100,000 babies. Sometimes called “bubble baby disease,” SCID means Oliver was born without a functioning immune system, leaving him completely unable to fight off any infection. Without treatment, SCID is fatal within the first year of life.
The good news: there is treatment. Oliver will likely need to undergo chemotherapy followed by a bone marrow transplant at Boston Children’s Hospital. This is a very long and difficult process, but we are hopeful this treatment will save Oliver’s life.
In the meantime, the entire family is in strict isolation to protect Oliver from any infection. Because of this, both Heather and Sean are out of work, Luna and Dylan are home from school and other activities. In addition to their loss of income, their family faces significant new expenses: medical supplies, travel, lodging near Boston, and months of careful at-home isolation in Vermont after the transplant is complete.
We just launched a GoFundMe to help keep my incredible sister and her family afloat during this unimaginably difficult time. Please support if you can, and share Oliver’s story - everything helps.
With love,
Ethan & Heather
#TeamOliver #SCID #GoFundMe
The past week has been an absolute whirlwind for our family. On April 13th, my sister/@heather0544’s sister-in-law Heather and our brother-in-law Sean welcomed their baby boy, Oliver Fox — a healthy, bright-eyed 7 pounds 2 ounces who joined my niece Luna (6) and nephew Dylan (3) at their home in Vermont.
Five days later, everything changed.
Oliver was diagnosed with SCID — Severe Combined Immunodeficiency — an extremely rare condition that affects just 1 in 100,000 babies. Sometimes called “bubble baby disease,” SCID means Oliver was born without a functioning immune system, leaving him completely unable to fight off any infection. Without treatment, SCID is fatal within the first year of life.
The good news: there is treatment. Oliver will likely need to undergo chemotherapy followed by a bone marrow transplant at Boston Children’s Hospital. This is a very long and difficult process, but we are hopeful this treatment will save Oliver’s life.
In the meantime, the entire family is in strict isolation to protect Oliver from any infection. Because of this, both Heather and Sean are out of work, Luna and Dylan are home from school and other activities. In addition to their loss of income, their family faces significant new expenses: medical supplies, travel, lodging near Boston, and months of careful at-home isolation in Vermont after the transplant is complete.
We just launched a GoFundMe to help keep my incredible sister and her family afloat during this unimaginably difficult time. Please support if you can, and share Oliver’s story - everything helps.
With love,
Ethan & Heather
#TeamOliver #SCID #GoFundMe
The past week has been an absolute whirlwind for our family. On April 13th, my sister/@heather0544’s sister-in-law Heather and our brother-in-law Sean welcomed their baby boy, Oliver Fox — a healthy, bright-eyed 7 pounds 2 ounces who joined my niece Luna (6) and nephew Dylan (3) at their home in Vermont.
Five days later, everything changed.
Oliver was diagnosed with SCID — Severe Combined Immunodeficiency — an extremely rare condition that affects just 1 in 100,000 babies. Sometimes called “bubble baby disease,” SCID means Oliver was born without a functioning immune system, leaving him completely unable to fight off any infection. Without treatment, SCID is fatal within the first year of life.
The good news: there is treatment. Oliver will likely need to undergo chemotherapy followed by a bone marrow transplant at Boston Children’s Hospital. This is a very long and difficult process, but we are hopeful this treatment will save Oliver’s life.
In the meantime, the entire family is in strict isolation to protect Oliver from any infection. Because of this, both Heather and Sean are out of work, Luna and Dylan are home from school and other activities. In addition to their loss of income, their family faces significant new expenses: medical supplies, travel, lodging near Boston, and months of careful at-home isolation in Vermont after the transplant is complete.
We just launched a GoFundMe to help keep my incredible sister and her family afloat during this unimaginably difficult time. Please support if you can, and share Oliver’s story - everything helps.
With love,
Ethan & Heather
#TeamOliver #SCID #GoFundMe
The past week has been an absolute whirlwind for our family. On April 13th, my sister/@heather0544’s sister-in-law Heather and our brother-in-law Sean welcomed their baby boy, Oliver Fox — a healthy, bright-eyed 7 pounds 2 ounces who joined my niece Luna (6) and nephew Dylan (3) at their home in Vermont.
Five days later, everything changed.
Oliver was diagnosed with SCID — Severe Combined Immunodeficiency — an extremely rare condition that affects just 1 in 100,000 babies. Sometimes called “bubble baby disease,” SCID means Oliver was born without a functioning immune system, leaving him completely unable to fight off any infection. Without treatment, SCID is fatal within the first year of life.
The good news: there is treatment. Oliver will likely need to undergo chemotherapy followed by a bone marrow transplant at Boston Children’s Hospital. This is a very long and difficult process, but we are hopeful this treatment will save Oliver’s life.
In the meantime, the entire family is in strict isolation to protect Oliver from any infection. Because of this, both Heather and Sean are out of work, Luna and Dylan are home from school and other activities. In addition to their loss of income, their family faces significant new expenses: medical supplies, travel, lodging near Boston, and months of careful at-home isolation in Vermont after the transplant is complete.
We just launched a GoFundMe to help keep my incredible sister and her family afloat during this unimaginably difficult time. Please support if you can, and share Oliver’s story - everything helps.
With love,
Ethan & Heather
#TeamOliver #SCID #GoFundMe
The past week has been an absolute whirlwind for our family. On April 13th, my sister/@heather0544’s sister-in-law Heather and our brother-in-law Sean welcomed their baby boy, Oliver Fox — a healthy, bright-eyed 7 pounds 2 ounces who joined my niece Luna (6) and nephew Dylan (3) at their home in Vermont.
Five days later, everything changed.
Oliver was diagnosed with SCID — Severe Combined Immunodeficiency — an extremely rare condition that affects just 1 in 100,000 babies. Sometimes called “bubble baby disease,” SCID means Oliver was born without a functioning immune system, leaving him completely unable to fight off any infection. Without treatment, SCID is fatal within the first year of life.
The good news: there is treatment. Oliver will likely need to undergo chemotherapy followed by a bone marrow transplant at Boston Children’s Hospital. This is a very long and difficult process, but we are hopeful this treatment will save Oliver’s life.
In the meantime, the entire family is in strict isolation to protect Oliver from any infection. Because of this, both Heather and Sean are out of work, Luna and Dylan are home from school and other activities. In addition to their loss of income, their family faces significant new expenses: medical supplies, travel, lodging near Boston, and months of careful at-home isolation in Vermont after the transplant is complete.
We just launched a GoFundMe to help keep my incredible sister and her family afloat during this unimaginably difficult time. Please support if you can, and share Oliver’s story - everything helps.
With love,
Ethan & Heather
#TeamOliver #SCID #GoFundMe
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
On August 31, I married the love of my life.
Words can’t capture how magical our entire wedding weekend was, how authentically us the whole thing felt, a celebration of this incredible life we’ve built, surrounded by so many people we love.
Especially in the context of this insane year - from the fires to my injury to the daily horrors unfolding all around us - we do not take it for granted how lucky we are to celebrate love, partnership, community, and joy, in the most beautiful and fun way we could imagine.
@heather0544, we’ve been at this thing for almost a decade now, and somehow it really does keep getting better. I love you with every fiber of my being.
📸 @bsharp_dir
Infinity thank you's for this past year. To my beautiful, inspiring NRDC colleagues, for the new, deep friendships I've made and the old ones I've strengthened. And for the unfailing ridiculous sunsets. LA, you have taught me so much. I am so lucky.
💞coming into this week with overwhelming gratitude after ten days visiting my old home and many lovely people. And a growing hunger to return.
I've been dating this cutie for a year and every day somehow gets more magical ⭐️ So head over heels for you @mnchildmusic
Hello 2017! It sorta looks like the sun is exploding on the horizon. This just about sums up my fears for January. Sending love to all you friends. I hope we can together find strength in this new challenging year.
One of many brilliant things about this Airbnb on a boat is waking up to this view. So excited my sweetheart is in town.
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