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We are proud to partner with Dr. Tran and his colleagues who are helping advance and study the outcomes of craniosynostosis surgery.We are happy to have our members' help with their submissions for the Advancing Craniosynostosis Treatment (ACT) Rare Diseases Consortium studies.

Thank you for being a part of this important research!

https://www.research.chop.edu/cornerstone-blog/chop-leads-rare-diseases-consortium-to-evaluate-craniosynostosis-surgeries

#Research

**VOLUNTEERS IN ORLANDO, FLNEEDED**

Are you a photographer or videographer based in Orlando, FL?! Interested in assisting us capture memories at our 2026 Retreat?

For more information or to sign up please visit:
https://ideali.st/avExm2

#Volunteer #VolunteerOrlando #OrlandoFL #OrlandoPhotographer #OrlandoVideographer #Retreat2026 #CCARetreat

“Cheers to Cher’s 80th Birthday”
Cher’s performance in the movie, Mask, released in 1985, sparked her interest in children and families affected by craniofacial differences. A few years later in 1990, she formalized her involvement with CCA, participating in Craniofacial Awareness Week in Washington, D.C. and signing on to become our national spokesperson. Cher conceived the idea of a camp for the whole family. Cher’s Annual Family Retreat was born. Since 1991, Retreats have been held annually throughout the country.

Watch a Video of Cher talking about CCA:
https://youtu.be/MpGR4Sdu4j8?si=iowFRmG-j38ENBuW

Donate to CCA in her honor:
https://ccakids.org/donate

Make a bid in her honor:
https://www.charitybuzz.com/categories/my-watches/catalog_items/auction-sestercentennial-412-carats-jewel-in-3394600

LAST CHANCE!!!

Celebrate America's 250th Anniversary by purchasing a unique and brilliant piece of history: a 41 ct. Lemon Citrine Jewel by GrandMaster Gemcutter Denny Bradley, cut with 250 shining facets.

You can bid now through May 20 at https://www.charitybuzz.com/catalog_items/auction-sestercentennial-jewel-in-celebration-of-3394600

"Cheers to Cher's 80th Birthday"
Cher's performance in the movie, Mask, released in 1985, sparked her interest in children and families affected by craniofacial differences. A few years later in 1990, she formalized her involvement with CCA, participating in Craniofacial Awareness Week in Washington, D.C. and signing on to become our national spokesperson. Cher conceived the idea of a camp for the whole family. Cher’s Annual Family Retreat was born. Since 1991, Retreats have been held annually throughout the country.

Watch a Video of Cher talking about CCA:
https://youtu.be/MpGR4Sdu4j8?si=iowFRmG-j38ENBuW

Donate to CCA in her honor:
https://ccakids.org/donate

Make a bid in her honor:
https://www.charitybuzz.com/categories/my-watches/catalog_items/auction-sestercentennial-412-carats-jewel-in-3394600

Send a message to Annie for her Retirement Celebration! See link below:
https://ccakids.dm.networkforgood.com/forms/annie-reeves-retirement-tribute

We will be honoring Annie Reeves, Program Director, for her 22 Years of Service to CCA! Please share your well wishes, memories, and thanks to her at the link above.

The notes will be presented to her at Retreat 2026
*** THE DEADLINE FOR SUBMISSIONS IS JUNE 5 at Midnight ***

#CCAKids #Craniofacial #Retirement

#PARTNERSUNDAY

Did you know that @campboggycreek offers a Craniofacial Weekend in September?

If you are looking for another chance to connect with kids with facial differences, check out this opportunity https://www.boggycreek.org/camp-calendar

#PARTNERSUNDAY

Did you know that @campboggycreek offers a Craniofacial Weekend in September?

If you are looking for another chance to connect with kids with facial differences, check out this opportunity https://www.boggycreek.org/camp-calendar

Join us on MONDAY at 7:30pm CST for another 𝐀𝐝𝐮𝐥𝐭𝐬 & 𝐀𝐥𝐮𝐦𝐧i 𝐆𝐫𝐨𝐮𝐩 Chat led by 𝐊𝐚𝐫𝐚 𝐉𝐚𝐜𝐤𝐦𝐚𝐧, 𝘊𝘊𝘈'𝘴 A𝘥𝘶𝘭𝘵 𝘗𝘳𝘰𝘨𝘳𝘢𝘮𝘮𝘪𝘯𝘨 𝘊𝘰𝘰𝘳𝘥𝘪𝘯𝘢𝘵𝘰𝘳⁣, in partnership with ConnectMed International
⁣
REGISTER:
https://ccakids.dm.networkforgood.com/forms/adults-with-facial-differences-meetup-group

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[Image description: yellow background with a black title font that reads: 'Adults & Alumni Group'An image of a male chatting on a video call on his ipad with three individuals displayed in bubbles above him next to a picture of staff member Kara, and a logo of ConnectMed International]

CCA is so lucky to have this incredible Jewel to Auction!

Celebrate America's 250th Anniversary by purchasing a unique and brilliant piece of history: a 41 ct. Lemon Citrine Jewel by GrandMaster Gemcutter Denny Bradley, cut with 250 shining facets.

You can bid now through May 20 at https://www.charitybuzz.com/catalog_items/auction-sestercentennial-jewel-in-celebration-of-3394600

Everyone should be #SeenAndServed with dignity across hospitality and service settings. And yet individuals in the facial difference community are having varying different experiences across the sector.

We want to ensure everyone is having positive experiences, and being respected, valued and included in everyday life.

Organisations and individuals in the facial and visible difference communities are patrons of the hospitality and service industries the same as anyone else.

Here our member organisations @betcs.cz @smiletrain and @ccakids share what the Seen And Served campaign means to them!

Video description: Clips from BeTCS Renáta Šťastná, Smile Train Community Development Manager Stephanie, and Children’s Craniofacial Association Executive Director Erica. Renáta is a woman with brown hair tied in a bun, who is going through TSW. She is wearing a comfortable burgundy t-shirt adjusted so that she can have bare shoulders and is sitting on a chair. Stephanie is a white woman with long brown hair and a cleft lip, wearing a black shirt. Erica is a white woman in her 40s with her dark hair pulled back and wearing white cat-eye glasses with a pink shirt and black puffer jacket. She has facial asymmetry. End clip features the Face Equality International logo and stickers that read “Join in with Seen And Served! International Face Equality Week 2026”, “How can I help you?”, “Serving Face Equality”, “A worldwide movement” and “See Me Serve Me” Stickers feature emoji style faces with facial differences such as a facial scar, birthmark and cleft lip.

#IFEW26 #FacialDifference #FaceEquality #InternationalFaceEqualityWeek

#SHOPTOGIVE #GROCERYREWARDS

Link your shopper's card to CCA and your grocery store will donate a portion of your spending to CCA!

Texas Families we are registered with @Kroger in the Texas division, so visit the community rewards site to see if you are in our region. For Kroger, we are registered as CU934
https://www.kroger.com/i/community/community-rewards

#KROGER #KrogerRewards #Grocery #Shop&Give

We’re proud to support our friends at Face Equality International for International Face Equality Week!

The theme of IFEW this year is hospitality - ensuring everyone is Seen And Served in public spaces such as restaurants, cafes and bars.
Regardless of appearance, everyone should be seen with dignity and served with respect. Public spaces must be welcoming, inclusive, and safe for all. Including additional company training for servers about working with customers who have facial differences or disabilities would help to create a better experience for everyone.

#IFEW2026 #SeenAndServed #InternationalFaceEqualityWeek #FacialDifference #VisibleDifference